Thursday, April 15, 2010

WALLY IS IMPROVING

This morning, I attended a meeting with Wally's full medical team, and he's actually rallying. The doctor explained that it's not that the Parkinson's drugs shouldn't be taken. It's that in level 4 of the disease (end stages) the drugs are no longer effective. Some doctors, in trying to retain the patient's quality of life, prescribe higher dosages but at this stage the higher dosage is actually too toxic for the body to handle. He gave the example of giving someone Tylenol who doesn't respond to the medication. So one doesn't work to kill a headache, the person takes two. Two doesn't work, so he takes three.

I apologize for any misleading information I may have posted earlier. I was stunned and angry to see how much better Wally was doing off the PD drugs. Whether his associated conditions have been side effects of the agonists or natural extensions of his PD, we really don't know at this point. All any of us can do is the best that we can--that includes doctors and pharmaceutical companies.

Wally's team doctor explained that he has removed all of Wally's agonists, sedatives and reduced his Sinemet dosage to half of what it was. This is why he is not experiencing dyskinesia (excessive shaking). The doctor also said that, if he sees Wally becoming irritated, he will remove the last dosages of the Sinemet as well. He will only give Wally what he needs to remain comfortable, and Wally agreed that, if he got a flu bug and needed some anitbiotic, he would accept it but that is all. He wants no heroics to save his life. He's ready to go into God's arms.

At this moment, Wally's overall bloodwork is better. He's gained a few pounds--up from 92 pounds to 99.7 lbs. He's back to exercising and taking a daily walk on his stroller, and he's eating everything he's served, even two desserts if he can get them. The state of his wound remains stable. This progress could not have been reached if he had remained in the assisted living residence where he was.

Thank you all for your prayers and support. It has helped both Wally and me immeasurably, and we will carry on being here for the rest of you.

Love and hugs,

Bonnie

10 comments:

  1. Dear Bonnie,
    Hope all is well -please update us on how your husband and you are keeping-we are always thinking of you both.
    We are enjoying the summer here in Ireland-a truly beautiful place especially when the sun shines!
    Best wishes,
    Berni

    ReplyDelete
    Replies
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  2. Bernie, you know you wrote that comment on Wally's birthday, and I'm just replying now. Shame on me!

    That's wonderful that you can enjoy your summer in Ireland. You'll come back with many gorgeous photos I'm sure. Thanks for thinking of us even when you're across the pond.

    Hugs, Bonnie

    ReplyDelete
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  5. It's indeed a miracle I can't believe am finally free from herpes virus, am grateful to this powerful herbalist called Dr Perfect.
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    You can also add him up on WhatsApp +1 (256)-251-3614

    He can also cure the following diseases
    1. Herpes virus
    2. Chronic venous disease
    3. Gonorrhoea
    4. Hiv/aids
    5. Alzheimers disease
    6. Asepsis
    7. Cancer
    8. Cerebrospinal meingtitis
    9. Infertility problems
    10. Als/ebv
    11. Hpv
    12. Enlargement of any type
    13. Getting back ex lover/divorce
    14. Hepatitis a,b,c
    15. Syphilis
    16. Arthritis
    17. Severe atopic dermatitis
    18. Leukaemia/lupus virus and many more....

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If you have questions you would like answered about caregiving a person with Parkinson's Disease in future posts, please add them to your comment. I have no medical knowledge and cannot discuss drug treatments.