Friday, October 30, 2009

SAD AND TIRED


Wally's condition is at the point where the neurologist can’t perform any more magic. His combination of diseases have taken over—Dystonia and Peripheral Neuropathy together with the Parkinson’s. His poor body is so twisted. The picture on the left was taken in 2006, on our 25th Anniversary when we returned to the Old Mill Inn in Toronto where we were married in the Chapel and held the reception in the wonderful restaurant after. In the past three years, his body has doubled over so that he is much shorter than I am, and he has lost even more weight. Only his legs have not shrunk in length.

One night in the past month, when the drugs did not kick in, I found him with his feet facing each other, and he was quaking from his waist down. He couldn’t stand. Eventually the meds did kick in, but it was scary to see and scary for him to experience. We have now fitted him for a wheelchair, and we’ve signed papers to admit him to a long-term care facility near me as soon as a room becomes available because the assisted-living home can no longer handle his needs. If he catches the swine flu, he won’t make it. He’s already having problems breathing because of the way the Dystonia has twisted his body to bend over his stomach. This deformation compresses his chest so his heart and lungs have to work harder. Eventually his heart will give out. He already experiences many “cold” sweats, which is indicative of heart trouble, and I’ve observed his breathing is more labored, though he never complains. The Peripheral Neuropathy actually numbs the terrible pain the Dystonia normally causes. Not to panic. This is not the typical path of Parkinson’s Disease. Wally has inherited his peculiar “cocktail” mix of conditions. I just haven’t had the heart to keep up the Parkinson’s blog. Frankly, for me, it is not cathartic, just plain painful to go over what we live with every day.

22 comments:

  1. My mother had Parkinson's on top of her own cocktail of conditions. God will Bless you for your faith in Him, your perseverance, and your unconditional love. ((hugs))

    ReplyDelete
    Replies
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      I'm Chris Anderson from UK I was sick of herpes for 3 years it affected my relationship with my girlfriend when she find out I was having herpes she left me, I missed her so much because I loved her with all my heart and she always makes me happy she was the source of my happiness I wanted her to come back to me, so I took every treatment and drugs but none could cure my sickness I never lose hope because I believe I will surely get cured and be reunited with my girlfriend again so I went online to search for herpes cure and I came across a comment of a man on how this powerful herbalist cured him of herpes, I didn't hesitate I emailed him and explained my problem to him on how this herpes has affected my relationship he replied my mail and he asked for some information which I gave him and he prepared a herbal cure when he finished preparing the cure he sent it to me and instructed me on how to use it and I did it as I was instructed, five days later I couldn't find any sign of herpes that's was how I was free from herpes virus and he also did a love spell that brought back my ex girlfriend, this was the best thing that have ever happened to me am indeed grateful to Dr Perfect for the help he has rendered to me if you need help to cure your diseases or bring back your ex contact him and get your problems solved at solutiontoallproblems1@gmail.com
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      11. Hpv
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  2. Dear Bonnie,
    As I sit here at my computer screen and type this I want you to know how much you're blog has come to mean to me.
    You Are Someone Special.Special people have the ability to share their lives with others. Your blog is honest, sincere and compassionate. I admire your goodness of heart. Thank you for sharing your thoughts and for being a truly special person who gives to others and helps them with the changes that come their way.

    Bonnie, I wish I could make everything ok. Please know we are thinking of you and wishing you moments to connect with others who are full of smiles and hugs and stories and laughter to share.

    ReplyDelete
  3. Dear Bonnie, You have my deepest sympathy. I know the trauma and distress involved with caring for a Parkinson sufferer. My husband has had Parkinsons diabetes and gastroparesis for ten years now. He can still walk around on his meds but in the evening and night he freezes and can often not even get on to the commode at the side of our bed, and all the cleaning up involved in this is taking its toll on me too. I am 81 in a few days.
    I will pray for you both. We can rely on God's mercy to see us all through this terrible time.
    Blessings,
    Wyn.

    ReplyDelete
  4. Dear Bonnie,

    Please write a few lines to let us know that you are ok (I have being checking on your blog every day).

    Please know that we are thinking of you and wishing you well.

    ReplyDelete
  5. Dear Bonnie,

    We hope this finds you well.

    Please let us know your doing ok -just a few
    lines is sufficent.

    Best wishes, Bernie

    ReplyDelete
  6. Dear Bernie, Wyn and Catrina,

    Forgive me. I did not look at this blog until today. I truly love you all and appreciate your thoughtfulness, also for sharing what you are experiencing in the care of the ones you love. In the New Year or mamy be sooner--after the Christmas Holidays, I will get back reporting on this blog to you.

    All my love and hugs, Bonnie

    ReplyDelete
  7. Bernie and Catrina, please go to Wyn's blog. Wyn, thank you for your loving inspired outreach. Not only your poems bring us closer to God and peace but also the background music. I play it while I work. We are never alone.
    http://www.wynb.blogspot.com

    ReplyDelete
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    ReplyDelete
  10. It's indeed a miracle I can't believe am finally free from herpes virus, am grateful to this powerful herbalist called Dr Perfect.
    I'm Chris Anderson from UK I was sick of herpes for 3 years it affected my relationship with my girlfriend when she find out I was having herpes she left me, I missed her so much because I loved her with all my heart and she always makes me happy she was the source of my happiness I wanted her to come back to me, so I took every treatment and drugs but none could cure my sickness I never lose hope because I believe I will surely get cured and be reunited with my girlfriend again so I went online to search for herpes cure and I came across a comment of a man on how this powerful herbalist cured him of herpes, I didn't hesitate I emailed him and explained my problem to him on how this herpes has affected my relationship he replied my mail and he asked for some information which I gave him and he prepared a herbal cure when he finished preparing the cure he sent it to me and instructed me on how to use it and I did it as I was instructed, five days later I couldn't find any sign of herpes that's was how I was free from herpes virus and he also did a love spell that brought back my ex girlfriend, this was the best thing that have ever happened to me am indeed grateful to Dr Perfect for the help he has rendered to me if you need help to cure your diseases or bring back your ex contact him and get your problems solved at solutiontoallproblems1@gmail.com
    You can also add him up on WhatsApp +1 (256)-251-3614

    He can also cure the following diseases
    1. Herpes virus
    2. Chronic venous disease
    3. Gonorrhoea
    4. Hiv/aids
    5. Alzheimers disease
    6. Asepsis
    7. Cancer
    8. Cerebrospinal meingtitis
    9. Infertility problems
    10. Als/ebv
    11. Hpv
    12. Enlargement of any type
    13. Getting back ex lover/divorce
    14. Hepatitis a,b,c
    15. Syphilis
    16. Arthritis
    17. Severe atopic dermatitis
    18. Leukaemia/lupus virus and many more....

    ReplyDelete
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  13. The Medical doctors said Herpes virus does not have a medical cure because the virus is capable of hiding within the human cells, it remains protected from your immune system. Herpes isn’t a special virus – your immune system has the tools to fight it back. But because it is able to lay dormant in protected cells, your immune system is unable to remove it from your body,But with strong reactive herbal medication is capable of getting rid of the virus gradually and totally from your body without damaging any of your cells,natural herbs kills the virus totally not just reducing the outbreak. Get natural herbs cure from Dr Osalu, I'm a medical Doctor and i have tried this herb from Dr Osalu and it works very well, i will recommend everyone out there to try this herbal medicine from Dr Osalu, I will drop his contacts so that you can reach him all by yourself You can Email him via his email drosaluherbalhome@gmail.com for easy and fast communication you can also call or add him on whats-app with this number +2348078668950.

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  14. I was diagnosed with Parkinson’s disease a year ago at the age of 68. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small cramped printing. And I tended to lose my balance. Neurologist had me walk down the hall and said I didn’t swing my right arm. I had never noticed! I was in denial for a while as there is no history in my family of parents and five older siblings, but now accept I had classic symptoms. I was taking pramipexole (Sifrol), carbidopa/levodopa and Biperiden, 2 mg. and started physical therapy to strengthen muscles. nothing was really working to help my condition.I went off the Siferol (with the doctor’s knowledge) and started on parkinson’s herbal formula i ordered from Solution Health Herbal Clinic, my symptoms totally declined over a 5 weeks use of the Parkinsons disease natural herbal formula. i am now almost 70 and doing very well, the disease is totally reversed!! Visit there website www.solutionhealthherbalclinic.com or E-mail: solutionsherbalclinic@gmail.com

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  16. My husband was diagnosed with early onset Parkinson's disease at 68. His symptoms were shuffling of feet, slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle. Things were tough for me, I too was diagnosed of COPD but now we both finally free from these diseases with the help of total cure herbal foundation, He now walks properly and all symptoms has reversed. He had trouble with balance especially at night, getting into the shower and exiting it is difficult. Getting into bed is also another thing he finds impossible. We had to find a better solution for his condition which has really helped him a lot,The biggest helped we had was totalcureherbsfoundation.com They walked us through the proper steps, im highly recommending this herbal formula to anyone who needs help.

    ReplyDelete
  17. Sincerely i was so sad when my husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Siferol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD natural herbal formula we ordered from Dr James, his symptoms totally declined over a 3 weeks use of the Dr James HERBAL Formula or Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! my Husband was cured and now my Husband is free from Parkinsons, i went to the hospital that said there was no cure to Parkinsons and informed them about my Husband healing and they were surprised. here is the contact email ( jamesherbalformula@gmail.com ) also reach him on hangout or through his whatsapp number via +2348102574680 Regards.

    ReplyDelete

  18. I was diagnosed of Parkinson disease 4 years ago, I started Azilect,
    then Mirapex as the disease progressed. In January last year, I
    started on PARKINSON DISEASE HERBAL PROTOCOL from Ultimate Herbal clinic.
    Few months into the treatment, I made a significant recovery.
    Almost all my symptoms are gone, great improvement with my movement
    and balance. Its been a year, life has been so good! Reach them at
    www.ultimateherbalclinic.com

    ReplyDelete

  19. My husband was diagnosed with early onset Parkinson's disease at 57.his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure ultimate health home, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimatehealthhome they walked us through the proper steps,am highly recommended this ultimatehealthhome@gmail.com to anyone who needs help.

    ReplyDelete
  20. After was running around from doctor to doctor before we finally get rid of her PD ,at age 74 my mother noticed that her handwriting was getting smaller and I was writing faster as well. She also noticed a small tremor in her left hand. The doctor went over her different symptoms and he suspected she either had a small stroke or the beginnings of Parkinson 's disease. After finding a neurologist and some testing she was diagnosed with the beginning stages of Parkinson’s disease. That was 3 years ago. She take Sinimet four times a day to control the symptoms, which include falling, imbalance, gait problems, swallowing difficulties, and slurring of speech,This year, our family doctor started her on multivitamincare. org PD Herbal mixture, 15 weeks into treatment she improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors.

    ReplyDelete
  21. i was diagnosed of parkinson disease 5 years ago,i started azilect,then mirapex as the disease progressed in february last year,and i started on parkinson disease herbal medicine from ultimate life clinic,few months into the treatment  i made a significant recovery,almost all my symptoms are gone,great improvement with my movement and balance,it been a year and life has been so good for me,reach them through there website at www.ultimatelifeclinic.com

    ReplyDelete

If you have questions you would like answered about caregiving a person with Parkinson's Disease in future posts, please add them to your comment. I have no medical knowledge and cannot discuss drug treatments.